Health Information Exchange

The Health Information Exchange (HIE) allows authorised health and care staff to view patient information – held in different clinical systems across the North East and North Cumbria – at the click of a button.

The HIE is being gradually phased in across the region. It enables frontline staff to view key information about people’s health and care such as diagnoses, medication, details of hospital admissions and treatments, held in different organisations.

How does it work?

The HIE is a ‘view only’ system which pulls through and displays data held in disparate clinical systems about a particular patient with whom you have a legitimate relationship. In most cases you will access HIE whilst accessing a patient’s record within your native clinical IT system (for example, eRecord at the Newcastle Hospitals). You are not able to change or edit the data but the HIE allows you to interrogate the data based on a number of categories including date and organisation.

Contact us if you need access to the HIE training materials, or access them via Discourse.

HIE current status

New connections to the HIE go live regularly. We aim to update staff in our blog section and this page updated as and when new connections take place. This page also shows what data each organisation is able to, or planning to share on the HIE. This is subject to connections working correctly and what organisations have told us they are sharing.

HIE: what’s coming next? Updated 16 November 2020

We are working closely with health trusts and local authorities across the region to understand when they will be ready to connect to the HIE and make data available. The timescales highlighted below are indications and may be subject to change.

  • Newcastle upon Tyne Hospitals NHS Foundation Trust LIVE
  • Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust LIVE
  • South Tyneside and Sunderland NHS Foundation Trust LIVE
  • North East Ambulance Service NHS Foundation Trust LIVE
  • Gateshead Health NHS Foundation Trust (demographics, labs, radiology and microbiology) 26 November 2020
  • Gateshead Health NHS Foundation Trust (visits and encounters) 13 January 2021
  • North Cumbria Integrated Care NHS Foundation Trust (RiO interface) 03 December 2020
  • Gateshead Health NHS Foundation Trust (appointments) 13 January 2021
  • Gateshead Health NHS Foundation Trust (correspondence) 09 March 2021
  • South Tees Hospitals NHS Foundation Trust (demographics and visits) 09 December 2020
  • South Tees Hospitals NHS Foundation Trust (labs, microbiology, pathology) 09 December 2020
  • North Tees and Hartlepool NHS Foundation Trust (visits, allergies, appointments, demographics) 24 February 2021
  • North Tees and Hartlepool NHS Foundation Trust (correspondence) 24 February 2021
  • County Durham and Darlington NHS Foundation Trust (demographics, visits and appointments 20 January 2021
  • County Durham and Darlington NHS Foundation Trust (labs, microbiology, pathology and radiology) 20 January 2021
  • Northumbria Healthcare NHS Foundation Trust (demographics and appointments) 26 January 2021
  • Northumbria Healthcare NHS Foundation Trust (discharge summaries) 26 January 2021
  • Tees, Esk and Wear Valley NHS Foundation Trust (demographics, visits, appointments, allergies, risks and warnings, care plans) 16 February 2021
  • Tees, Esk and Wear Valley NHS Foundation Trust (discharges, events and referrals, CPA, correspondence, Mental Health Act status) 16 February 2021

What data is available on the HIE?

The data shared will vary from organisation to organisation and will depend on each clinical system’s technical ability to connect to the HIE, see the data matrix above for the current data flows from each organisation. In the main, the data shared will be across these broad data sets:

  • Problems
  • Diagnoses
  • Procedures
  • Medications
  • Vital Signs
  • Allergies
  • Immunisations
  • Lab Results
  • Scans
  • Clinical Correspondence
  • Appointments
  • Physical Examinations
  • Family History
  • Visits
  • Social History

When can I access the HIE?

You can access the HIE for direct patient care, when you have a legitimate reason for doing so.

The processing of personal data for the provision of direct care is allowed under the General Data Protection Regulations (GDPR).  This means that key information about a patient’s health and care (such as diagnoses, medications, details of hospital admissions and treatments) can be shared between different health and care services who are member organisations of the Great North Care Record.

Best practice would be to inform patients wherever possible that their record has been or will be accessed and we would encourage staff to continue to do this at all appropriate opportunities, although you no longer need explicit permission from the patient to access their record. Find out more about why we removed permission to view.

What should patients do if they have questions about the Great North Care Record?

All organisations involved in the Great North Care Record have been provided with posters and patient leaflets. The best place to signpost people to, if the leaflets do not answer their questions is the helpline or this website:

What if patients don’t want their information to be made available?

Contact the helpline on 0344 811 9587, email: gncarerecord@nhs.net, or visit the opt out page on our website.