Matthew Gould opens new Great North Care Record offices

27 June 2019: As part of a nationwide tour, Matthew Gould visited the Great North Care Record in a bid to understand more about the technological challenges facing North East and North Cumbria and how sharing patient data could support health and care in our region.

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Steve Cram unveiled as ambassador of the Great North Care Record

04 April 2019: Set up over three years ago, the Great North Care Record is a new way of health and care organisations sharing patient information electronically across the North East and North Cumbria to improve treatment and save lives.

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Great North Care Record teams up with Cerner to deliver joined up care records

02 April 2019: A new partnership to deliver connected care records for the North East and North Cumbria is being launched.

Led by Newcastle Hospitals as part of the Great North Care Record, Cerner has been chosen to provide the technology which will securely connect patient information across the region.

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Majority of patients in North East and North Cumbria willing to share their data with healthcare providers, say research

18 September 2018: Great North Care Record reveals results of two studies into patient data sharing.

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The Academic Health Science Network for the North East and North Cumbria funds a regional Health Information Exchange for the next two years

21 August 2018: The Academic Health Science Network for the North East and North Cumbria, working with its partners at Connected Health Cities, have agreed to fund a regional Health Information Exchange (HIE) for the next two years.

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North Tyneside GP scoops national honours in Digital Health Awards

24 July 2018: A North Tyneside GP has taken top honours in one of the most keenly-contested categories at the Digital Health Awards 2018.

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Three million patients to benefit from Great North Care Record

23 March 2018: The Great North Care Record, a pioneering digital health project, is improving the treatment of three million people across the North East and North Cumbria.

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Great North Care Record Network launches to encourage further information sharing

29 November 2017: Regional record sharing project the Great North Care Record (GNCR) has launched a new regional network to encourage greater information sharing across the North East and North Cumbria.

Great North Care Record future hosting arrangements confirmed

29 November 2017: The Great North Care Record is currently supported by Connected Health Cities through a contract with Newcastle University until the end of December 2018. As that contract comes to an end, and the GNCR takes shape, the executive team is seeking to secure its longer-term future.

Information Commissioners Office backs development of Great North Care Record privacy tool

21 November 2017: The Information Commissioners Office has awarded funding to a project at Teesside University to help develop the Great North Care Record privacy tool. The tool will capture patients’ privacy preferences for sharing their information with researchers.

Information Sharing in the News

We are sure many of you are aware of the media coverage and the concerns that have been raised around General Practice System Supplier, TPP, and their eDSM data sharing programme.

This quite rightly raises anxieties for doctors and patients so we are discussing this with both Clinical Commissioning Groups and General Practice Federations to understand the impact for our practices and the new systems in place.

There is General Practioner Committee  advice around this which we are expecting imminently and will share. In the meantime we draw your attention to the statement issued by the ICO (Information Commissioner’s Office):

“The ICO has data protection compliance concerns about SystmOne’s enhanced data sharing function and the potential risk to patients’ medical records held by GPs.

 “However, given the possible impact to patient care, the ICO is not advocating that users switch off data sharing at this stage.

 “The ICO’s concerns are centred on the fair and lawful processing of patient data on the system and ensuring adequate security of the patient data on the system. We continue to work closely with TPP, NHS Digital and NHS England and have seen an initial plan that they have put forward. This includes initial steps they are taking to remedy these issues and further work is planned.”

Based on this advice we suggest that practices do not immediately turn off the eDSM function where it is already in place and do not sign or put in place any new arrangements until we have issued further advice and have worked with the whole system to understand the implications and resolutions.

Any patient concerned about their privacy or who would like further information can look at our Frequently Asked Questions page or call the helpline on 0344 811 9587 for further guidance.
Professor Joe McDonald
Director GNCR

Great North Care Record signs up nearly all North East GP practices

A single ‘Great North Care Record’ across North East England has take another step forward, with nearly all GPs practices agreeing to share their patient records. About 369 GP practices, or 96% in the North East, have agreed to turn on information sharing, allowing secondary care providers to view the GP records of 3.6 million people.

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